Caring for a Person with Alzheimer's Disease: Your Easy -to-Use- Guide from the National Institute on Aging (Revised January 2019)

Caring for a Person with Alzheimer's Disease: Your Easy -to-Use- Guide from the National Institute on Aging (Revised January 2019)

Author: National Institute on Aging

Publisher: Lulu.com

Published: 2019-04-13

Total Pages: 106

ISBN-13: 0359588190

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The guide tells you how to: Understand how AD changes a person Learn how to cope with these changes Help family and friends understand AD Plan for the future Make your home safe for the person with AD Manage everyday activities like eating, bathing, dressing, and grooming Take care of yourself Get help with caregiving Find out about helpful resources, such as websites, support groups, government agencies, and adult day care programs Choose a full-time care facility for the person with AD if needed Learn about common behavior and medical problems of people with AD and some medicines that may help Cope with late-stage AD


Dementia Home Care

Dementia Home Care

Author: Tracy Cram Perkins

Publisher: Behler Publications

Published: 2021-03-18

Total Pages: 466

ISBN-13: 1941887139

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The target audience is women between the ages of 42 and 65. They represent the majority of unpaid care givers for loved ones with dementia. Dementia Home Care: How to Prepare Before, During and After will examine taking on the role of care giver and help them make informed decisions about in-home care giving. It will give examples of how to create a safe living space, how to use distraction techniques, and suggest available resources for the care giver. It will emphasize the role of care giver respite and participating in dementia community support to relieve the daily stress of dementia care. Home care giver, Tracy Cram Perkins, will use anecdotes drawn from twelve years of experience. Demetia Home Care will cover aggressive behavior, coping strategies, memory aids, communication aids, and support services. There is a space at the end of each chapter for the reader to record special or humorous moments with their loved ones. And it will address the empty nester experience after the loss of a loved one—to a nursing facility or to death—rarely covered in other books of this genre. This life-lesson of care giving is not meant to destroy us but meant to remind us to take care of ourselves, forgive ourselves, accept ourselves. To know other people trudge up this same hill with us every day. To pay forward kindness in some measure. To know laughter has not abandoned us. At the end, to know some measure of joy. -- Tracy Cram Perkins


Alzheimers Care-My Way

Alzheimers Care-My Way

Author: P.C. Rice

Publisher: Lulu.com

Published: 2014-02-10

Total Pages: 178

ISBN-13: 1291723323

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A husband's caregiving experiences for his wife. His approach to care giving was unconventional. He chose to continue daily life as normal and sought logical interpretations for her irrational behaviour, entering her clouded Dementia world. Her condition declined rapidly whilst in hospital, unaided, she walked into hospital and returned wheelchair bound. In spite of his best efforts to provide her with twenty-four care, he soon conceded it was impossible to care and maintain their large home and grounds. She was doubly incontinent and rigidity had set in, thus he felt compelled to place her in a Nursing Home. In the months that followed her condition deteriorated to a degree that she became bedridden and required palliative care. His daily eight hour harrowing visits, became unbearable and against all advice he decided to take her home to die. For nine long painful months her survival prospects were rated very poor. Constantly he was warned she was dying, but he insisted on care giving in his own way.


The 36-Hour Day

The 36-Hour Day

Author: Nancy L. Mace

Publisher: JHU Press

Published: 2021-08-10

Total Pages: 361

ISBN-13: 1421441705

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The 36-Hour Day is the definitive dementia care guide.


Six Steps to Managing Alzheimer's Disease and Dementia

Six Steps to Managing Alzheimer's Disease and Dementia

Author: Andrew E. Budson MD

Publisher: Oxford University Press

Published: 2021-08-23

Total Pages: 353

ISBN-13: 0190098147

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Your needs as a caregiver are just as important as those your family member with Alzheimer's Disease or dementia. This book will provide just the insight and guidance you need. Caregiving for a loved one with Alzheimer's disease or dementia is hard. It's hard whether you're caring for your spouse, parent, grandparent, sibling, other family member, or friend. Even if you had an extra ten hours each day to do it, it's hard to manage all the problems that come with dementia. And caring for a loved one with dementia can sometimes feel like a long, lonely journey. Six Steps to Managing Alzheimer's Disease and Dementia can help, addressing concerns such as: · Is the problem Alzheimer's, dementia, or something else? · How do you approach problems in dementia? · How do you manage problems with memory, language, and vision? · How do you cope with emotional and behavioral problems? · What are the best ways to manage troubles with sleep and incontinence? · Which medications can help? · Which medications can actually make things worse? · How do you build your care team? · Why is it important to care for yourself? · How do you sustain your relationship with your loved one? · How do you plan for the progression of dementia? · How do you plan for the end and beyond? Six Steps to Managing Alzheimer's Disease and Dementia is comprehensive yet written in an easy-to-read style, featuring clinical vignettes and character-based stories that provide real-life examples of how to successfully manage Alzheimer's disease and dementia.


The Problem of Alzheimer's

The Problem of Alzheimer's

Author: Jason Karlawish

Publisher: St. Martin's Press

Published: 2021-02-23

Total Pages: 269

ISBN-13: 1250218748

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A definitive and compelling book on one of today's most prevalent illnesses. In 2020, an estimated 5.8 million Americans had Alzheimer’s, and more than half a million died because of the disease and its devastating complications. 16 million caregivers are responsible for paying as much as half of the $226 billion annual costs of their care. As more people live beyond their seventies and eighties, the number of patients will rise to an estimated 13.8 million by 2050. Part case studies, part meditation on the past, present and future of the disease, The Problem of Alzheimer's traces Alzheimer’s from its beginnings to its recognition as a crisis. While it is an unambiguous account of decades of missed opportunities and our health care systems’ failures to take action, it tells the story of the biomedical breakthroughs that may allow Alzheimer’s to finally be prevented and treated by medicine and also presents an argument for how we can live with dementia: the ways patients can reclaim their autonomy and redefine their sense of self, how families can support their loved ones, and the innovative reforms we can make as a society that would give caregivers and patients better quality of life. Rich in science, history, and characters, The Problem of Alzheimer's takes us inside laboratories, patients' homes, caregivers’ support groups, progressive care communities, and Jason Karlawish's own practice at the Penn Memory Center.


When Someone You Know Is Living in a Dementia Care Community

When Someone You Know Is Living in a Dementia Care Community

Author: Rachael Wonderlin

Publisher: Johns Hopkins University Press

Published: 2016-11-01

Total Pages: 220

ISBN-13: 1421420651

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A guide to help family and friends navigate the emotional and practical challenges they face when someone they love is living in community care. Life changes dramatically for the entire family when the decision is made to move a person who has dementia from home to community care. Rachael Wonderlin, a gerontologist, dementia care expert, and popular dementia care blogger, helps caregivers cope with the difficult behaviors, emotions, and anxieties that both they and their loved one may experience. Writing from her own practice and drawing on the latest research in gerontology and dementia, Wonderlin explains the different kinds of dementia, details the wide range of care communities available for people who have dementia, and speaks empathetically to the worry and guilt many families feel. "Do not let anyone make you feel like you have taken the 'easy way out' by choosing a dementia care community," she writes. "You are still going to deal with a lot of challenging behaviors, concerns, and questions regarding your loved one's care." When Someone You Know Is Living in a Dementia Care Community is an accessible guide offering answers to such questions as: How do I choose a place for my loved one to live? What can I find out by visiting a candidate memory-care community twice? What do I do if my loved one asks about going home? How can I improve the quality of my visits? What is the best way to handle conflict between residents, or between the resident and staff? How can I cope with my loved one's sundowning? What do I do if my loved one starts a romantic relationship with another resident? An indispensable book for family members and friends of people with dementia, When Someone You Know is Living in a Dementia Care Community touches the heart while explaining how to make a difficult situation better.


Creative Care

Creative Care

Author: Anne Basting

Publisher: HarperCollins

Published: 2020-05-19

Total Pages: 271

ISBN-13: 0062906194

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A MacArthur Genius Grant recipient pioneers a radical change in how we interact with older loved ones, especially those experiencing dementia, as she introduces a proven method that uses the creative arts to bring light and joy to the lives of elders. In Creative Care, Anne Basting lays the groundwork for a widespread transformation in our approach to elder care and uses compelling, touching stories to inspire and guide us all—family, friends, and health professionals—in how to connect and interact with those living with dementia. A MacArthur Genius Grant recipient, Basting tells the story of how she pioneered a radical change in how we interact with our older loved ones. Now used around the world, this proven method has brought light and joy to the lives of elders—and those who care for them. Here, for the first time, everyone can learn these methods. Early in her career, Basting noticed a problem: today’s elderly—especially those experiencing dementia and Alzheimer’s— are often isolated in nursing homes or segregated in elder-care settings, making the final years of life feel lonely and devoid of meaning. To alleviate their sense of aloneness, Basting developed a radical approach that combines methods from the world of theater and improvisation with evidence-based therapies that connect people using their own creativity and imagination. Rooted in twenty-five years of research, these new techniques draw on core creative exercises—such as “Yes, and . . .” and “Beautiful Questions.” This approach fosters storytelling and active listening, allowing elders to freely share ideas and stories without worrying about getting the details “correct.” Basting’s research has shown that these practices stimulate the brain and awaken the imagination to add wonder and awe to patients’ daily lives—and provide them a means of connection, both with the world and with those caring for them. Creative Care promises to bring light and hope to a community that needs it most.